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People living with type 1 diabetes learn, in many ways, to be research scientists and investigators of their own lives. We learn how slices of pizza or a plate of spaghetti affects our blood sugar, and how to mediate those effects with multiple boluses of insulin or a long-lasting dose. We discover precisely how much sugar we need to stay steady during an intense workout session. In doing so, we begin to learn about the meaning and applications of real-world data and evidence. Modern medical and scientific research takes several different approaches to investigation, from randomized, controlled clinical trials to longitudinal, observational studies that examine how people live with various conditions and therapies in the real world.

T1D Exchange Registry - A User-Friendly Way to Participate in Type 1 Diabetes Research

The T1D Exchange Registry is a collection of individuals with type 1 diabetes and their supporters who participate in research. Adults with type 1 diabetes or parents of children with type 1 diabetes can join by registering online, providing consent, and completing a short 28-question survey. Participants will then be asked to complete a similar questionnaire once a year. Once registered, participants will also have the ability to take part in more research opportunities in the future.

T1D Exchange is conducting interviews with caregivers of people with type 1 diabetes who are 55 and over in the United States. The interview will be a semi-structured one-to-one phone interview with a diabetes professional to discuss your perspective and experience providing care for adult patients with type 1 diabetes.

T1D Exchange Quality Improvement Coalition Panel Tackles Issues of Type 1 Diabetes Care

They agreed that technology, if properly implemented, can augment the clinic visit, among other topics. The panel took place at the 2019 T1D Exchange annual meeting in Cambridge, MA.

 Innovation Challenge Finalist Bonbouton Inks Licensing Agreement with Stevens Institute of Technology

The partnership is aimed at bringing the company’s smart insole technology, which has the potential to detect diabetic foot ulcers, to market.

The Evolution of Real-World Evidence in Drug and Device Development

At the T1D Exchange annual meeting, two FDA officers discuss the changing regulatory landscape for drugs and devices.

At the T1D Exchange annual meeting, Wendy Wolf, PhD, discusses the successful launch of T1D Exchange Registry.

-Kelsie LaFerriere The T1D Exchange Registry (hereon referred to as the Registry) is a research study designed to harness the power of people with type 1 diabetes. By completing a questionnaire once a year and opportunities to join other type 1 diabetes research, participants can add their voices, experiences, and data to a body of […]

Check out a live stream of T1D Exchange’s Annual Meeting 2019 in Cambridge, MA: Live Stream The event has featured speakers from the FDA, faculty from our Quality Improvement Collaborative, and more. Join us online for insights, questions, and discussion panels!