Your profile provides important information that drives type 1 research
You may have seen the big changes taking place on Glu this week! We have launched more than just a new look and feel for Glu—we have also launched new questions in your Profile area.
Your Profile is important because it provides helpful information about you and your type 1 care and management.
As you know, Glu is more than a great place to learn about type 1 diabetes (T1D) and share experiences with others who get it; it’s also a place where we can make our voices heard to help drive research that matters to us. Information our Glu community provides helps researchers gain understanding about:
- unmet needs and challenges that require more study,
- daily insights that can improve clinical practice,
- gaps in access to care and therapies
- insights that can help drive product development (in other words, opportunities to help inform the path to better therapies for type 1 diabetes).
There’s Much More for Researchers to Learn
So, what more do we need to know? Here’s what you will find in the updated profile section:
- We are asking about race and ethnicity. Why? There may be unmet needs or gaps in care that potentially relate to race or ethnicity and Glu wants to uncover potential issues and help design possible solutions.
- We want to know who is on your healthcare team. We won’t ever contact your healthcare provider(s) with specific information about you—but we do want to know who is caring for people with type 1. That way, we can share research that may help your healthcare provider(s) improve care. Or, we may invite them to participate in our clinic network – those working with T1D Exchange to research the challenges of T1D and working to improve the quality and efficiency of clinical care.
- More questions about pumps, devices and emerging therapies. Today, there are many FDA-approved devices (pumps and continuous glucose monitoring) and therapy options available for people with T1D—but there still appears to be slow patient adoption for certain devices (such as CGM). Learning about use and potential gaps around medical devices may help lead to improved clinical care, access and affordability.
To complete your profile, simply visit your profile under the Settings tab:
Then, click through each of the tabs labeled About Me, My T1D and My Healthcare Team:
It only takes a few minutes – but it’s providing researchers and clinicians with important insights and data that is changing T1D care for the better.
Who’s on Glu?
When you look at the numbers and other demographics about our community, the power of Glu is clear. The new questions we’ve added to the Profile page will make the following stats even more important to the future of T1D management.
- 8,774 people registered on Glu are diagnosed with T1D
- The majority of T1Ds on Glu are women
- A high percentage of our community wears a pump (about 75%) and while 66% of our community who completed their profile indicate that they have used or are using a continuous glucose monitor (CGM), currently; only 16% of our population wears both a pump and a CGM.
- 60% of Glu participants with T1D work have either full or part-time jobs and most (95%) have health insurance.
There are 3,698 parents or guardians of a child with T1D on Glu. These participants appear to be predominantly women (45%) but we have a higher number of parents and guardians who have not identified their gender (43%).
Thank you for updating your profile information and helping to advance research! It only takes a few minutes, but the information you share really makes a difference.
-Jill Petrie, GluJill