Meet the Registry Team

Meet the Registry

T1D Exchange Registry is a group of individuals with type 1 diabetes who want to actively participate in research. By joining the easy-to-use platform and sharing their voices, experiences, and data, people with type 1 diabetes add to the most comprehensive data set of type 1 diabetes health information in the United States, driving meaningful treatment, care, and policy.

Curious about who’s behind the research at T1D Exchange Registry? Want to know who exactly makes up a research team, and what do they do?

Meet the T1D Exchange Registry team! Let’s take a look at the different roles and responsibilities of the team.


Meet the Registry

Name: Wendy Wolf

Company Role: Director Biobank and Registry

Favorite quotes:

“It takes as much energy to wish as it does to plan.” – Eleanor Roosevelt

What do you do at T1D Exchange?

For the Registry, I’m the principal investigator of the study, which means that I’m responsible for the study design, overall operations, and ultimately the results!

What’s your background?

I have a Ph.D in in Cell and Molecular Biology from Northwestern University. Over my career, I’ve established and led patient-centric research projects collecting biospecimens and health data at institutions in Chicago and Boston. These were leveraged for research examining the relationship between genetic variants and health across various diseases. I joined T1D Exchange over 3 years ago and have enjoyed applying my experience to type 1 diabetes.

What do you enjoy doing when you are not working?

I like reading, hiking, and watching soccer (my kids’ games and professional matches).

How do you hope the Registry will impact the type 1 diabetes community?

I hope that the Registry dataset will improve our understanding of the type 1 diabetes community, and ultimately inform policy improvements and better diagnostics, devices, and therapies. I also hope that the registry makes it easy to contribute to research, and that participants learn interesting information in the process.


Meet the Registry

Name: Haley Oh

Company Role: Associate Director of Clinical Research

Your top 3 favorite books?

Hunting and Gathering, The Earthsea Cycle, Catch-22

 What do you do at T1D Exchange?

I direct the Registry team and manage product ownership responsibilities.

What’s your background?

I have a MPA from Northeastern with a concentration in healthcare management. My career has driven me through organizational leadership, grants and financial management, clinical trial feasibility, product ownership and the building of financial and research management systems. I came to the T1D Exchange from New England Baptist Hospital as their Director of Research, where I led a team who built an institutional orthopedic registry.

What are the values that drive you?

Honesty, hard work, cooperation, and fun. Never forget the fun.

How do you hope the Registry will impact the type 1 diabetes community?

I hope the Registry will give participants an open platform to lend their voice, opinions and experiences to improve daily lives of those living with type 1 diabetes. I also really hope the Registry will be a platform for participants to openly and easily contribute to research. We hope to show how easy it is to be involved in research.


Meet the Registry

Name: Caitlin Rooke

Company Role: Lead Research Coordinator

Your top 3 favorite Podcasts? Code Switch, Unladylike, and Freakonomics Radio. Levar Burton Reads gets an honorary mention!

What do you do at T1D Exchange?

Everything! I get to wear a lot of hats and do a lot of different things. Some of my time is spent working with our development team on the technical build of the T1D Exchange Registry website. I also help plan the marketing and recruitment strategy, create the research protocol, work with the Institutional Review Board, make sure data is secure, and think of new research opportunities and features for participants.

What’s your background?

I worked at a hospital cancer center for 2 years as a clinical research coordinator, which is like a tour guide for patients electing to participate in clinical trials. I then spent a year in pharma as a clinical trial associate learning about drug development for various neurodegenerative diseases before finding myself at T1D Exchange.

What do you enjoy doing when you are not working?

I love going to games of some of the great local sports teams here in Boston, checking out a concert, or convincing myself to sign up for a race.

How do you hope the Registry will impact the type 1 diabetes community?

My hope is that we can amplify the voices of the type 1 diabetes community to help deliver better drugs, therapies, and policies that are created as a direct result of sharing these voices and experiences.


Meet the Registry

Name: Kelsie LaFerriere

Company Role: Research Coordinator

Favorite quote: “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” – Margaret Mead

What do you do at T1D Exchange?

With the Registry team, my primary focus is on participant recruitment and engagement. I work closely with the T1D Exchange marketing team to promote the Registry, and plan future Registry involvement and presence at conferences, walks, and events regarding healthcare advocacy and type 1 diabetes.

What’s your background?

I studied psychology at Providence College, with a focus on child development. There, I worked as a research assistant in The Family and Development Lab. Before coming to T1D Exchange, I worked at Massachusetts General Hospital in the Center for Celiac Research and Treatment, where I worked in research on various autoimmune and neurodevelopmental disorders, including celiac disease, autism, and type 1 diabetes.

What are the values that drive you?

Positivity, commitment, and integrity.

How do you hope the Registry will impact the type 1 diabetes community?

I hope that through the Registry platform, we can further encourage people to take an active role in their own healthcare management and encourage research participation. Participating in meaningful research can be easy and fun, and opens doors to future type 1 diabetes discoveries.


Meet the Registry

Name: Enoma Okunbor

Company Role: Research Coordinator

Favorite quote: “Piti, piti, wazo fè nich li.” – Haitian proverb (“Little by little, the bird builds its nest.”)

What do you do at T1D Exchange?

As a member of Registry team, I work primarily with our development team, NewFire Partners, to design, build, and test the Registry website. Teamwork is central to our success, so I get to be involved in other aspects related to running the Registry, including marketing and regulatory operations. Recently I’ve been able to analyze some of the data we are collecting in the Registry, and it’s been really exciting to see some trends in the Registry cohort, including the age distribution of participants and how people find out about the Registry.

What’s your background?

I have a background in community health.  Previously, I worked on the trial management team of a multinational clinical trial aimed at improving treatment for people with multi-drug resistant tuberculosis. Before that, I worked at the Veterans Affairs Hospital in Boston, enrolling veterans for various COPD clinical trials aimed at ways to better manage COPD symptoms.

What do you enjoy doing when you are not working?

I love to travel to new places — this year I traveled to Stowe, VT for the first time. I recently started hiking and it has become one of my favorite things to do! Finally, I love riding my bike when the weather is nice.

How do you hope the Registry will impact the type 1 diabetes community?

I hope that the Registry will increase access to research for people in the type 1 diabetes community who may otherwise have been excluded from traditional research models.


Be heard. Support the type 1 diabetes community. Help drive research that matters.

For more information, or to join, visit the T1D Exchange Registry, or contact us at (617) 892-6165 and Registry@T1DExchange.org.

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