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T1D Exchange Registry - A User-Friendly Way to Participate in Type 1 Diabetes Research

The T1D Exchange Registry is a collection of individuals with type 1 diabetes and their supporters who participate in research. Adults with type 1 diabetes or parents of children with type 1 diabetes can join by registering online, providing consent, and completing a short 28-question survey. Participants will then be asked to complete a similar questionnaire once a year. Once registered, participants will also have the ability to take part in more research opportunities in the future.

T1D Exchange is conducting interviews with caregivers of people with type 1 diabetes who are 55 and over in the United States. The interview will be a semi-structured one-to-one phone interview with a diabetes professional to discuss your perspective and experience providing care for adult patients with type 1 diabetes.

To help get the word out about the Registry and the opportunities it offers to participate in research, members of the Registry team here at T1D Exchange traveled to a range of type 1 diabetes events, walks, and other gatherings.

Kobi, a young woman living with type 1 diabetes in Florida, spoke with us at Friends for Life about her experiences with diabetes and the massive changes she’s seen in her lifetime.

Rodney Miller stopped by the T1D Exchange booth at friends for life to talk about diabetes.

You can sign an e-birthday card to the scientist who brought insulin therapy into the medical world, and you can help try and break a Guinness World Record for greeting card signatures, thanks to this fun campaign by our friends at Beyond Type 1.

Help the Diabetes Emergency Relief Coalition (DERC) learn more about how better to serve the diabetes community after storms strike.

  T1D Exchange reached out to Dr. Mark Atkinson and Carol Atkinson, who have been working around the clock to get insulin and supplies to people affected by the hurricanes. Carol Atkinson, Director at Insulin for Life USA, speaks with T1D Exchange’s Dr. Alicia McAuliffe-Fogarty about the current needs of Insulin for Life to help […]

Dear Glu Community, We are deeply saddened by the aftermath of the recent hurricanes. We wanted to make sure that you know where to donate supplies or access them if you or a loved one are in need. Below, we have compiled a list of resources. To donate supplies: To donate insulin click here (Insulin for […]

Medicaid is a crucial source of coverage for patients and consumers with serious and chronic healthcare needs, including type 1 diabetes. But proposals to phase out Medicaid expansion and implement per capita caps or block grants, like those included in the American Health Care Act (AHCA), HR 1628, threaten the ability of Medicaid to provide […]