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BOSTON--(BUSINESS WIRE)--T1D Exchange today announced that it will share data from ten abstracts, including six late breaking, focused on quality improvement, population health and real-world evidence and outcomes of people living with type 1 diabetes (T1D) at the American Diabetes Association (ADA) 80th Scientific Virtual Sessions. Two posters from the organization’s Quality Improvement Collaborative were recognized by healthcare information firm Close Concerns in its list of Top 50 Most Notable Posters.

t1D exchange is launching a surveillance study of patients with COVID-19 and diabetes

T1D Exchange today announced the launch of a population health surveillance study of individuals with type 1 diabetes (T1D) who are suspected or confirmed to have contracted Coronavirus Disease 2019 (COVID-19). The results of the study will be used to better understand the etiology and potential outcomes in COVID-19 patients and inform future clinical quality improvement activities to better respond to the global pandemic.

People living with type 1 diabetes learn, in many ways, to be research scientists and investigators of their own lives. We learn how slices of pizza or a plate of spaghetti affects our blood sugar, and how to mediate those effects with multiple boluses of insulin or a long-lasting dose. We discover precisely how much sugar we need to stay steady during an intense workout session. In doing so, we begin to learn about the meaning and applications of real-world data and evidence. Modern medical and scientific research takes several different approaches to investigation, from randomized, controlled clinical trials to longitudinal, observational studies that examine how people live with various conditions and therapies in the real world.

Research on type 1 diabetes often centers on its health impacts, but people with type 1 diabetes have long said that such research only paints half of the picture, and that there are many more hidden costs to life with the condition.

T1D Exchange Registry - A User-Friendly Way to Participate in Type 1 Diabetes Research

The T1D Exchange Registry is a collection of individuals with type 1 diabetes and their supporters who participate in research. Adults with type 1 diabetes or parents of children with type 1 diabetes can join by registering online, providing consent, and completing a short 28-question survey. Participants will then be asked to complete a similar questionnaire once a year. Once registered, participants will also have the ability to take part in more research opportunities in the future.

T1D Exchange is conducting interviews with caregivers of people with type 1 diabetes who are 55 and over in the United States. The interview will be a semi-structured one-to-one phone interview with a diabetes professional to discuss your perspective and experience providing care for adult patients with type 1 diabetes.

Type 1 Diabetes Study Participants Often Mention Lost Sleep, Diabetes Distress

The research, conducted by T1D Exchange Patient-Centered Research, points to the need for greater psychological and emotional support for people with type 1 diabetes.

Read About T1D Exchange Studies Featured at the 2019 AADE Meeting

Here are four articles about five studies presented at the annual conference on everything from fear of hypoglycemia to lost sleep from blood sugar management.

A Missed Type 1 Diabetes Diagnosis Increases Risk of Diabetic Ketoacidosis by 18%

That was just one of the troubling findings about the perils of misdiagnosing type 1 diabetes in a study conducted by T1D Exchange.