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The T1D Exchange Registry is a collection of individuals with type 1 diabetes and their supporters who participate in research. Adults with type 1 diabetes or parents of children with type 1 diabetes can join by registering online, providing consent, and completing a short 28-question survey. Participants will then be asked to complete a similar questionnaire once a year. Once registered, participants will also have the ability to take part in more research opportunities in the future.
The Registry is designed to be patient-centered in its approach as part of its mission to be a truly inclusive, representative, and transparent research effort that has the potential to advance care for people with type 1 diabetes.
This pioneering effort provides a mobile-friendly platform for people throughout the U.S. to participate online and share information about their type 1 diabetes in order to help researchers develop more targeted and effective approaches to treating and living with the disease.