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T1D Exchange Registry - A User-Friendly Way to Participate in Type 1 Diabetes Research

The T1D Exchange Registry is a collection of individuals with type 1 diabetes and their supporters who participate in research. Adults with type 1 diabetes or parents of children with type 1 diabetes can join by registering online, providing consent, and completing a short 28-question survey. Participants will then be asked to complete a similar questionnaire once a year. Once registered, participants will also have the ability to take part in more research opportunities in the future.

Kobi, a young woman living with type 1 diabetes in Florida, spoke with us at Friends for Life about her experiences with diabetes and the massive changes she’s seen in her lifetime.

How Patient Advocates Are Vital to the T1D Exchange Registry

The Registry is designed to be patient-centered in its approach as part of its mission to be a truly inclusive, representative, and transparent research effort that has the potential to advance care for people with type 1 diabetes.

T1D Exchange Registry - A User-Friendly Way to Participate in Type 1 Diabetes Research

Innovative new features help make participating in type 1 diabetes research easier and more accessible.

Meet the Registry Team

Meet the Registry

Get to know the team behind the T1D Exchange Registry

This pioneering effort provides a mobile-friendly platform for people throughout the U.S. to participate online and share information about their type 1 diabetes in order to help researchers develop more targeted and effective approaches to treating and living with the disease.